Remember this post from last October? Below is a picture of Jackson from today! We are so grateful. Thank you, Sarah (and so many others!), for being absolutely fantastic nurses. Thank you for loving our buddy too--it made it so easy for us to entrust him to your care. We can't wait to bring him by for a visit sometime! You won't believe your eyes!
"Sometimes the smallest things take up the most room in your heart." - Winnie the Pooh
Wednesday, July 22, 2015
Tuesday, July 14, 2015
10 months
Our little buddy is changing every day lately! He's learning how to passionately express his displeasure (oh dear), but also learning how to better communicate his excitement and love...he's such a sweet little munch. He gets embarrassed and hides his face, claps when he's excited, and recently decided he loves his back rubbed while he's falling asleep. He also discovered recently that if he holds mommy's free hand during his back rub she can't escape as easily. Sneaky! He babbles all the time, but unfortunately has only learned one real word, "Dada". We have daily "mama" practice sessions but so far it just won't take. :)
We recently took Jackson to a highly recommended doctor for a second opinion regarding his long-term antibiotic use. Mason and I very much desire that Jackson could get off of these antibiotics as soon as is safely possible. We were praying for clear direction. The doctor didn't give us quite the report we were hoping for, but did give clear direction...he agrees with our other infectious disease doctor that Jackson needs to continue this medicine indefinitely. He said he will continue to consider the possibility of stopping it, but at this time feels it would be too risky.
Our cardiology appointment to reassess Jackson's stent status was postponed by the cardiologist being out of town, so Lord willing we will find out more about that in August. If that looks good he should be able to stop his Lasix at that time.
After a nearly eternal wait, there is evidence of a little tiny baby tooth about to make its debut. I hope a few more will follow quickly, because I can hardly buy enough baby food to fill that belly! We are loving the effects of J's enormous appetite...Charlie said the other day while we were driving somewhere, "Mommy, I want you to just think about these squishy baby knees." :) A very pleasant thought, indeed.
We are all so grateful for our pal. How is it possible one year is almost here?
We recently took Jackson to a highly recommended doctor for a second opinion regarding his long-term antibiotic use. Mason and I very much desire that Jackson could get off of these antibiotics as soon as is safely possible. We were praying for clear direction. The doctor didn't give us quite the report we were hoping for, but did give clear direction...he agrees with our other infectious disease doctor that Jackson needs to continue this medicine indefinitely. He said he will continue to consider the possibility of stopping it, but at this time feels it would be too risky.
Our cardiology appointment to reassess Jackson's stent status was postponed by the cardiologist being out of town, so Lord willing we will find out more about that in August. If that looks good he should be able to stop his Lasix at that time.
After a nearly eternal wait, there is evidence of a little tiny baby tooth about to make its debut. I hope a few more will follow quickly, because I can hardly buy enough baby food to fill that belly! We are loving the effects of J's enormous appetite...Charlie said the other day while we were driving somewhere, "Mommy, I want you to just think about these squishy baby knees." :) A very pleasant thought, indeed.
We are all so grateful for our pal. How is it possible one year is almost here?
Tuesday, July 7, 2015
Little friend
Jackson's sweet buddy Oliver is having a port implanted today to better manage his severe hemophilia. Would you pray for him and his family?
We love you, lil champ! We know you'll do great.
We love you, lil champ! We know you'll do great.
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