Monday

The big news of the day is that I just gave Jackson's last twice-daily shot...! They had originally planned to continue these till April, but changed their minds because Jackson's blood has been so thin and his IV line (ie source for easy blood monitoring) is coming out tomorrow. I never would've thought I could be so grateful for thin blood! Mason and I despise those shots...much more so than even Jackson. No more IV after tomorrow is also VERY good news. The IVs are a constant source of possible infection, keep us up for long periods at night, and also make dressing and bathing much more difficult. As long as he is weaning off the narcotics he'll still have medicine throughout the night, but those are a quick little push through his feeding tube. So tomorrow may have to be a celebration day and who knows--maybe he'll have his first real bath on Christmas Eve!

We continue to appreciate prayer for progress on his bottle. He hasn't lost ground but hasn't gained any either. Speech therapy should be starting to work with him at home within the next couple weeks. Also, an ultrasound of his venous system performed last Thursday in St Louis showed more clotting in his superior vena cava (the area that was originally blocked), as well as in his leg at the IV PICC line site. They don't plan to do anything to treat this right now but will repeat the test next month.

We adore having this little guy home.