Tuesday

Jackson is doing very well! It is such a relief to have his chest closed and to see him getting rid of all that swelling. We are always anxious to get to the hospital in the morning, but today I felt a new and wonderful anticipation...wondering how he would look, what progress he had made overnight, etc. Previously when he was making progress it was all with the underlying thought of surgery. Now it is all with the underlying thought of home. Wow.

So here's what the next weeks will hold for Jackson, Lord-willing: breathe with no extra support, get rid of as many meds as possible, get rid of invasive lines, work on feeding. We so appreciate your prayers for consistent progress in these areas! They are currently weaning him from the ventilator, and as long as he tolerates that okay they hope to get his breathing tube out tomorrow. He was never able to completely breathe on his own before surgery. Their thought and our hope is that perhaps that was due wholly to his heart problems. Our prayer is that he might have no trouble with breathing on his own. He has been able to stop a couple meds already and they hope to stop a couple more today. He was off breast milk for a few days because of surgery but now is back to every three hour feeds through his NG feeding tube. God-willing our next several posts will be to update on his progress! Our hearts are full of gratitude.