Thursday, November 20, 2014

Eleven weeks

We are so grateful for eleven weeks of life for/with Jackson.

The doctor told me yesterday that she feels she has figured Jackson out...he likes to do things on his own schedule. She felt he had been pushed too hard and quickly to progress and it had actually caused him to lose ground rather than gain. The plan now is to follow Jackson's time table--ie slow down. This will necessarily delay discharge, but it was very obvious to us and to all involved that he just is not ready. So for now...no weaning. Just chilling. His diuretics were increased, and his sedation was even increased just a bit in an attempt to decrease withdrawal symptoms. We are thankful to have Mason's parents here to visit for a while over the next week!

Thank you, dear friends, for caring and praying. One day at a time!

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